What You Need To Know About Tourettes Syndrome

Understanding Tourette’s Syndrome: A Helpful Guide for Those Newly Diagnosed

We know that receiving a diagnosis of Tourette’s Syndrome can feel overwhelming. There’s so much information out there, and it can be hard to know where to start. Whether you or someone you love has recently been diagnosed, we want you to know that you’re not alone.

Tourette’s is often misunderstood, and many people have questions about what it really means to live with the condition. You might be wondering what causes tics, how they change over time, or what kind of support is available. We’ve put this guide together to help answer those questions in a way that’s easy to understand.

We’ll cover what Tourette’s is, how it’s diagnosed, and what life can look like after a diagnosis. We’ll also talk about managing symptoms, navigating school or work, and how friends and family can offer support. Our aim is to provide reassurance and practical advice so that you can feel more confident about the road ahead.

Tourette’s might bring challenges, but with the right knowledge and support, it’s possible to live a full and happy life. Let’s take it one step at a time, together.

What Is Tourette’s Syndrome? Understanding the Condition and What It Means for You

If you or someone close to you has recently been diagnosed with Tourette’s Syndrome, you probably have a lot of questions. What exactly is it? Why does it happen? What does it mean for the future? It’s completely natural to feel a little uncertain at first, but we’re here to help.

Tourette’s is often misunderstood, and many people only know about it from what they’ve seen in films or on social media. The reality is that Tourette’s is a neurological condition that affects each person differently. Some people have mild symptoms that hardly affect their day-to-day life, while others find their tics can be more noticeable or disruptive. Whatever the case, understanding what Tourette’s is—and what it isn’t—can help you feel more in control and better prepared for the journey ahead.

What Happens in the Brain?

Tourette’s is a neurological condition, which means it affects the way the brain and nervous system work. Specifically, it’s linked to the basal ganglia, an area of the brain that helps control movement. In people with Tourette’s, this part of the brain doesn’t function in quite the same way, which leads to tics—sudden, involuntary movements or sounds.

Tics can be simple, like blinking or throat clearing, or more complex, involving multiple movements or words spoken in a certain pattern. These tics aren’t something a person chooses to do, and although they can sometimes be held back for short periods, they eventually need to be released. It can be a bit like trying not to blink—you can resist for a while, but sooner or later, your body does it anyway.

How Common Is Tourette’s Syndrome?

Many people are surprised to learn that Tourette’s isn’t as rare as they might have thought. It’s estimated that around 1 in 100 children have some form of Tourette’s, but not all cases are diagnosed. Many people experience mild tics that don’t cause much difficulty, and in some cases, they fade over time.

Tourette’s is more common in boys than in girls, with studies suggesting that males are three to four times more likely to develop the condition. However, it can affect anyone, and no two cases are exactly the same.

What Causes Tourette’s?

Tourette’s isn’t caused by anything a person has done, and it isn’t linked to upbringing, stress, or personality. It’s a genetic condition, meaning it runs in families. If you have Tourette’s, there’s a good chance that someone else in your family has tics, even if they’ve never been formally diagnosed.

Scientists believe Tourette’s happens due to a combination of genetic and environmental factors that affect brain development. The exact causes aren’t fully understood, but research suggests that differences in how certain brain chemicals—like dopamine and serotonin—function may play a role.

Is Tourette’s Just About Swearing?

One of the biggest misconceptions about Tourette’s is that everyone with the condition shouts out inappropriate words or phrases. This symptom, called coprolalia, does exist, but it only affects a small percentage of people with Tourette’s—around 10 to 15 percent.

Tourette’s is about so much more than this stereotype. Most people with the condition experience a mix of motor and vocal tics that are unique to them. These might include blinking, head movements, sniffing, humming, or repeating certain words or sounds. The idea that all people with Tourette’s swear uncontrollably is a myth that has led to a lot of misunderstanding and stigma around the condition.

Does Tourette’s Always Last for Life?

Tourette’s is a lifelong condition, but that doesn’t mean symptoms always stay the same. For many people, tics come and go, sometimes getting better or worse at different points in life. It’s common for tics to start in childhood, peak in the teenage years, and then reduce in adulthood.

Some people find that their tics become much less noticeable as they get older, while others continue to experience them throughout their lives. Everyone’s experience is different, but one thing is clear—Tourette’s doesn’t define a person, and with the right support, people with the condition can live full and rewarding lives.

What Else Comes with Tourette’s?

Tourette’s doesn’t exist in isolation. Many people with the condition also have other related conditions, such as:

ADHD (Attention Deficit Hyperactivity Disorder)
OCD (Obsessive-Compulsive Disorder)
Anxiety or depression
Sensory processing differences

These additional conditions can sometimes be more challenging than the tics themselves. For example, someone with Tourette’s and OCD may feel an overwhelming need to perform certain rituals alongside their tics. Understanding these co-occurring conditions can help in finding the best ways to manage symptoms and improve quality of life.

Living with Tourette’s: The First Steps

A Tourette’s diagnosis might feel like a lot to take in, but it’s important to remember that you are not alone. There are many ways to manage symptoms, get support, and help others understand the condition.

One of the first steps is to learn as much as you can. The more you understand about Tourette’s, the easier it will be to explain it to others and to recognise what helps or worsens symptoms. Keeping a record of tics and how they change over time can be useful, especially when discussing treatment options with doctors or specialists.

It’s also helpful to connect with others who have Tourette’s. Support groups, online communities, and charities can provide reassurance, advice, and a sense of belonging. Hearing from people who have been through similar experiences can make a huge difference in adjusting to life with the condition.

Moving Forward with Tourette’s: Knowledge, Support, and Next Steps

Tourette’s may be part of your life, but it doesn’t have to define you. With the right support, understanding, and strategies in place, it’s possible to navigate the challenges and embrace the opportunities that come with it.

As we move through this guide, we’ll explore the different aspects of Tourette’s, from getting a diagnosis to managing symptoms and finding support. No matter where you are in your journey, we’re here to help you every step of the way.

Early Signs and Getting a Diagnosis: Understanding the Journey to a Tourette’s Diagnosis

If you or someone in your family has started experiencing unusual movements or sounds that seem out of their control, it’s natural to wonder what’s going on. You might have noticed blinking, throat clearing, head jerking, or even repeating certain words. These could be signs of Tourette’s Syndrome, but recognising the condition isn’t always straightforward.

Getting a diagnosis can be an emotional journey, filled with questions and uncertainty. Some people seek answers quickly, while others may go years before realising that what they are experiencing has a name. We know how important it is to have the right information, so we want to walk you through the early signs, when to seek help, and what to expect from the diagnostic process.

What Are the First Signs of Tourette’s Syndrome?

Tourette’s often starts in childhood, with symptoms appearing between the ages of 5 and 10. The first signs usually involve small, simple movements, known as motor tics. These might include:

Blinking more than usual
Eye rolling or darting to the side
Shoulder shrugging
Nose twitching
Sudden head movements

At first, these actions might not seem like much. Many parents assume their child is just fidgety or going through a phase. Some children even develop sniffing or throat-clearing tics, which are mistaken for allergies or a mild cold.

Over time, more complex tics can develop, which may involve multiple movements or vocal sounds. These might include:

Repeating words or sounds
Sudden grunts, whistles, or humming
Jumping, spinning, or tapping objects
Touching things in a certain way
Stretching the mouth or grimacing

Tics can come and go, sometimes appearing daily and then vanishing for weeks before returning. This unpredictable nature can make it hard to recognise at first, but a key sign is that the actions are involuntary—people with Tourette’s do not choose to do them, even if they sometimes have a brief moment where they can suppress them.

What Causes Tics to Start?

No one knows exactly why Tourette’s develops, but research suggests a combination of genetic and environmental factors. If there’s a family history of tics, obsessive-compulsive disorder (OCD), or attention deficit hyperactivity disorder (ADHD), there may be a higher chance of a child developing Tourette’s.

Certain situations can make tics more noticeable, including:

Stressful or exciting moments
Fatigue or lack of sleep
Being in a new or overwhelming environment
Focusing for long periods, such as in school

Tics often change in type and intensity over time. Some may disappear altogether, while new ones appear. This fluctuation is completely normal, though it can be confusing for both the individual and their loved ones.

When Should You See a Doctor?

Many children go through phases of repetitive movements, like nail biting or tapping, and not every unusual movement is a sign of Tourette’s. However, if you or your child is experiencing repeated movements or sounds that seem uncontrollable and have lasted for more than a year, it’s worth speaking to a doctor.

A good time to seek medical advice is if:

Tics are happening regularly and becoming more noticeable
They are interfering with daily life, such as at school or social settings
They are causing distress or frustration
Other difficulties, such as anxiety or trouble concentrating, are also present

Some people avoid seeking help because they worry they’ll be misunderstood or dismissed. But understanding what’s happening is the first step toward finding the right support.

What Happens During a Tourette’s Diagnosis?

There is no single test for Tourette’s Syndrome, so diagnosis is based on observation, medical history, and ruling out other conditions.

A doctor will usually begin by asking about symptoms, when they started, and whether they change over time. They might ask questions like:

What movements or sounds have you noticed?
When did they begin?
Do they happen every day or come and go?
Is there a pattern to when they occur?
Does anyone in the family have a history of tics or similar conditions?

In some cases, a video recording of tics can help, as symptoms may not always appear during an appointment. Keeping a journal of when and where tics happen can also be useful in identifying patterns.

The Official Criteria for Diagnosing Tourette’s

Doctors follow specific criteria when diagnosing Tourette’s. These include:

Tics must include both motor (movement) and vocal (sound) tics, though they don’t have to happen at the same time
Tics must have been present for at least one year
Symptoms usually begin before the age of 18
Tics must not be caused by medication, another medical condition, or injury

If all these criteria are met, a diagnosis of Tourette’s Syndrome is likely. However, if someone only has motor tics or vocal tics but not both, they may be diagnosed with a related condition, such as chronic tic disorder.

Could It Be Something Else?

Some conditions share similar symptoms with Tourette’s, so doctors may consider other possibilities before making a final diagnosis. These can include:

Transient tic disorder – Temporary tics that last less than a year
Chronic tic disorder – Motor or vocal tics that don’t meet the criteria for Tourette’s
OCD – Repetitive actions that are driven by obsessive thoughts rather than involuntary tics
ADHD – Movement and impulsivity that can sometimes be mistaken for tics

To rule out other conditions, a doctor may refer patients to a neurologist or specialist in movement disorders. Occasionally, additional tests like MRI scans are used to check for other neurological issues, though this isn’t usually necessary for a Tourette’s diagnosis.

What Happens After a Tourette's Diagnosis?

Receiving a diagnosis of Tourette’s can bring mixed emotions. Some people feel relieved to have answers, while others worry about what the future holds. It’s important to remember that a diagnosis does not change who someone is—it simply provides an explanation for what they’ve already been experiencing.

After a diagnosis, it can be helpful to:

Learn as much as possible about Tourette’s
Connect with support groups and others with similar experiences
Keep track of tics and possible triggers
Look into therapy or treatment options if needed

Having Tourette’s does not mean that life will be limited. Many people with the condition go on to do incredible things, and while tics can be frustrating, they do not define a person.

Finding the Right Support

Adjusting to a diagnosis can take time, but support is available. Whether through medical professionals, online communities, or educational resources, finding the right help can make all the difference.

Families, teachers, and employers also play an important role in supporting individuals with Tourette’s. Small changes, like understanding that tics are involuntary and allowing breaks when needed, can help create a more inclusive environment.

Tics and Tourette’s: Breaking Misconceptions and Moving Forward

Getting a diagnosis is just the beginning of the journey. While Tourette’s may present challenges, it also offers opportunities to develop resilience, creativity, and self-awareness. With the right information, support, and strategies, individuals with Tourette’s can thrive in all areas of life.

In the next section, we’ll take a closer look at tics themselves—what they are, how they change, and what can make them better or worse. Understanding tics in more detail can help individuals and their families navigate the ups and downs of living with Tourette’s.

Understanding Tics: More Than Just Movements and Sounds

If you or someone you love has Tourette’s Syndrome, you might already be familiar with tics—those sudden, repetitive movements or sounds that seem to come out of nowhere. Tics are the defining symptom of Tourette’s, but they’re often misunderstood. Some people assume they’re voluntary, others think they’re always the same, and many don’t realise that tics can change over time.

We want to help you understand tics better. Knowing how they work, why they happen, and what can affect them can make a big difference in managing life with Tourette’s. Tics may not always be predictable, but understanding them is the first step in feeling more in control.

What Are Tics and Why Do They Happen?

Tics are sudden, rapid, and involuntary movements or sounds that a person makes without meaning to. They happen because of differences in how the brain processes movement and control. While we don’t yet fully understand why tics occur, researchers believe they are linked to an imbalance of neurotransmitters—chemicals in the brain that help control movement and communication.

People with Tourette’s often describe tics as an urge or pressure that builds up inside them. This is called a premonitory sensation—a feeling that something needs to be released. It’s similar to the need to sneeze or scratch an itch. Some people can hold back their tics for short periods, but this can feel uncomfortable, and eventually, the tic needs to come out.

The Different Types of Tics

Tics can be grouped into two main categories: motor tics and vocal tics. Within these categories, they can be further divided into simple tics and complex tics.

Motor tics affect movement. They can be as small as an eye blink or as noticeable as jumping.
Vocal tics involve sounds, such as throat clearing, humming, or repeating words.

Simple Tics

Simple tics involve just one movement or sound. They tend to be quick and repetitive. Examples include:

Blinking or twitching
Shoulder shrugging
Head jerking
Sniffing or throat clearing
Clicking the tongue

Complex Tics

Complex tics involve multiple movements or more structured sounds. They often look more deliberate, but they are still involuntary. Examples include:

Touching or tapping objects in a certain way
Repeating words or phrases (echolalia)
Saying inappropriate words (coprolalia)
Mimicking someone else’s movements (echopraxia)
Twisting the body or jumping

Many people associate Tourette’s with coprolalia—uncontrollable swearing or saying offensive words. However, this only affects around 10 to 15 percent of people with Tourette’s. Most people with the condition do not experience this symptom.

Why Do Tics Change Over Time?

One of the most unpredictable things about tics is that they can change. A tic that happens every day for months might suddenly disappear, only for a new one to take its place. Some people find that their tics go through cycles, becoming more intense at certain times and then easing off.

Tics can be influenced by:

Age – Many people find that tics are at their worst between the ages of 8 and 12. Some tics lessen in adulthood, while others persist.
Stress and Anxiety – Tics often get worse during stressful situations, such as school exams, social events, or big life changes.
Excitement or Happiness – It’s not just negative emotions that make tics more noticeable. Some people find that excitement or anticipation can bring on more tics.
Fatigue and Sleep – Being overtired can make tics worse, and some people experience tics in their sleep.
Focusing on Tics – The more someone thinks about their tics, the more likely they are to happen. This is why discussing tics too much or pointing them out can sometimes make them worse.

Understanding these patterns can help people with Tourette’s and their families find ways to manage symptoms more effectively.

Can Tics Be Controlled?

A common question people ask is whether tics can be controlled. The short answer is: sometimes, but not for long.

Some people with Tourette’s can suppress their tics for short periods, especially in situations where they feel self-conscious, such as in school or at work. However, this takes a lot of energy and can lead to a rebound effect—where tics come back even stronger once they are released.

There are also strategies that can help reduce the frequency of tics over time. These include:

CBIT (Comprehensive Behavioural Intervention for Tics) – This is a form of therapy that helps people learn to recognise their pre-tic sensations and develop competing movements that interrupt the tic cycle.
Mindfulness and Relaxation Techniques – Reducing stress can help lessen tics. Breathing exercises, meditation, and yoga can be beneficial.
Lifestyle Adjustments – Getting enough sleep, eating well, and having downtime can help regulate tics.
Medication – In some cases, medication is an option, but it is usually only recommended if tics are severe and affecting daily life.

Tics are not a choice, and trying to force someone to stop will not work. Instead, understanding and patience are key.

How Do Tics Affect Daily Life?

Tics can be frustrating, especially when they interfere with daily activities. For some people, tics are mild and don’t cause much disruption. For others, they can make tasks like writing, concentrating, or socialising more challenging.

Some of the ways tics can impact daily life include:

School and Learning – Tics can sometimes make it harder to focus in class. Some children need extra support, such as being allowed to take breaks or use a fidget tool.
Friendships and Social Situations – Tics can attract unwanted attention, which can lead to self-consciousness. It helps when friends understand that tics are not something a person can control.
Work and Employment – Some adults with Tourette’s worry about how their tics will be perceived at work. Employers who are supportive and accommodating can make a huge difference.

People with Tourette’s can do anything they set their minds to, whether it’s excelling in school, pursuing a career, or building strong relationships. The key is finding supportive environments and strategies that work for them.

Supporting Someone with Tics

If you have a family member, friend, or colleague with Tourette’s, the best thing you can do is be understanding. Some helpful ways to support them include:

Not drawing attention to tics – Pointing out tics or asking someone to stop usually makes them worse.
Learning about Tourette’s – The more you understand, the easier it is to support them.
Being patient – Tics can be unpredictable, but patience and kindness go a long way.
Advocating for acceptance – Helping others understand Tourette’s can reduce stigma and make life easier for those with the condition.

Living with Tics: Learning, Adapting, and Thriving

Tics are a part of life for people with Tourette’s, but they do not define them. Learning to manage tics, finding supportive people, and understanding what makes symptoms better or worse can make a big difference.

In the next section, we will explore what life is like after a diagnosis—what to expect, how to adjust, and how to move forward with confidence.

Life After a Tourette’s Diagnosis: What to Expect and How to Adjust

A Tourette’s diagnosis can bring a mix of emotions. Some people feel relieved to finally have answers, while others worry about what the future holds. It’s completely normal to have questions—how will this affect school, work, or friendships? Will tics get worse? Is there anything that can be done to make life easier?

We want you to know that having Tourette’s does not mean life will be limited. It just means learning how to manage symptoms, finding the right support, and making small adjustments where needed. Tourette’s is only one part of a person’s life, and with understanding and the right tools, people with the condition can do anything they set their minds to.

Adjusting to Life with Tourette’s: The First Steps

Getting a diagnosis is just the beginning of the journey. For many, it’s a time of learning—understanding what tics are, what triggers them, and how to explain them to others. The more knowledge and support a person has, the easier it becomes to navigate daily life.

Some of the first steps after a diagnosis include:

Learning about the condition – Understanding what Tourette’s is (and what it isn’t) can help reduce worries and misconceptions.
Tracking symptoms – Keeping a record of tics and what makes them better or worse can help when speaking to doctors or looking for treatment options.
Finding support – Whether it’s through online communities, local support groups, or talking to others with Tourette’s, having people who understand makes a big difference.
Talking to family, friends, and teachers – Helping others understand the condition can lead to better support at home, school, and work.

Everyone adjusts in their own way. Some people want to know everything straight away, while others take time to process their diagnosis. There’s no right or wrong way to approach it—what matters is finding a path that works best for you.

Will Tourette’s Get Worse Over Time?

One of the biggest questions after a diagnosis is what to expect in the future. Tics can change over time, sometimes becoming more noticeable and other times fading into the background.

For many people, tics peak between the ages of 8 and 12. Some find that their symptoms decrease in adulthood, while others continue to experience tics throughout their lives. There is no way to predict exactly how tics will change, but what’s important to remember is that there are always ways to manage them.

Many adults with Tourette’s say that, over time, they become more comfortable with their tics and learn how to handle them in different situations. Finding strategies that help—whether through therapy, relaxation techniques, or support from loved ones—can make a big difference in day-to-day life.

How to Explain Tourette’s to Others

One of the challenges of living with Tourette’s is helping others understand what it is. Because there are so many myths about the condition, people may not always know how to react.

When explaining Tourette’s to others, it can help to:

Keep it simple – “I have Tourette’s, which means I make movements and sounds that I can’t control. They might change over time, but they don’t hurt me.”
Reassure them – Let people know that tics aren’t dangerous and that they don’t need to do anything special.
Correct misconceptions – If someone thinks Tourette’s is just about swearing, gently explain that this is rare and not what most people with the condition experience.
Encourage questions – Some people feel awkward asking about Tourette’s, but giving them the chance to learn can help break down misunderstandings.

For younger children, teachers and classmates can play a big role in how they feel about their diagnosis. Talking to schools about ways to support children with Tourette’s—such as allowing movement breaks or giving extra time on written tasks—can create a more positive learning environment.

Coping Strategies for Everyday Life

Everyone with Tourette’s finds their own way of managing their symptoms. Some people don’t feel the need to do anything different, while others find that certain strategies help them feel more in control.

Some helpful approaches include:

Identifying and managing triggers – Stress, excitement, and fatigue can all affect tics. Finding ways to reduce stress, such as using breathing techniques or mindfulness exercises, can help.
Using distraction techniques – Focusing on an activity, such as drawing, playing an instrument, or exercising, can sometimes reduce the intensity of tics.
Creating a supportive environment – Being around people who understand Tourette’s can make social situations easier. Educating family, friends, and teachers can help reduce anxiety about tics.
Using therapy and treatment options – Some people benefit from behavioural therapies like CBIT (Comprehensive Behavioural Intervention for Tics), which can help manage tics in certain situations.

There is no single way to manage Tourette’s that works for everyone. It’s about finding what fits best with each person’s lifestyle and needs.

Living a Full Life with Tourette’s

Tourette’s does not stop people from achieving their goals. There are athletes, musicians, doctors, teachers, and actors with the condition who have built successful careers and full lives. The key is to focus on strengths, find ways to manage challenges, and seek support when needed.

For children, having parents and teachers who encourage their interests and abilities can make a huge difference. Confidence and self-acceptance grow when people feel supported and valued for who they are, not just for their diagnosis.

For adults, finding employers who understand Tourette’s and are willing to make small accommodations—such as allowing flexible workspaces or reducing pressure in high-stress situations—can help create a more inclusive work environment.

Building Confidence and Self-Acceptance

One of the most important things after a Tourette’s diagnosis is learning to accept and feel confident in yourself. This can take time, but having a strong support network and a positive mindset can help.

Some ways to build confidence include:

Focusing on strengths – Everyone has talents and abilities, and Tourette’s doesn’t take those away. Finding hobbies and passions can help shift focus away from tics.
Talking to others with Tourette’s – Support groups and online communities can provide encouragement and advice from people who understand.
Educating others – The more people know about Tourette’s, the less stigma and misunderstanding there is. Helping raise awareness can make a difference in how the condition is perceived.
Celebrating achievements – Whether it’s overcoming a personal challenge, doing well in school, or excelling at a hobby, recognising accomplishments can boost confidence.

Tourette’s is just one part of life. It may come with challenges, but it also comes with strengths—resilience, determination, and the ability to see the world in a unique way.

Thriving with Tourette’s: Looking Ahead with Positivity

A Tourette’s diagnosis is not the end of possibilities—it’s just the beginning of understanding a new part of life. By learning about the condition, finding supportive people, and using strategies that help, people with Tourette’s can thrive in every area of life.

In the next section, we’ll explore different treatment and management options, including therapy, lifestyle changes, and medical approaches. Finding the right combination of strategies can help individuals with Tourette’s feel more comfortable and in control.

Managing Tourette’s: Treatments, Therapies, and Everyday Strategies

After a Tourette’s diagnosis, one of the biggest questions people have is whether there is any way to reduce or manage tics. While there is no cure for Tourette’s, there are many approaches that can help make symptoms more manageable. Some people find that their tics naturally lessen over time, while others look into therapy, lifestyle changes, or in some cases, medication.

The right approach is different for everyone, and not every treatment works for every person. But having a range of options means that each person can find what works best for their individual needs. Whether it’s learning behavioural techniques, reducing stress, or making small adjustments to daily routines, there are ways to help manage symptoms and improve quality of life.

Do All People with Tourette’s Need Treatment?

Not everyone with Tourette’s seeks treatment. Some people have mild tics that don’t affect their daily lives, while others find that they naturally improve with age. However, if tics cause pain, embarrassment, or difficulty at school, work, or in social situations, it can be helpful to explore different management strategies.

When deciding whether to seek treatment, it’s important to consider:

Are tics interfering with daily activities, such as writing, speaking, or concentrating?
Are tics causing distress or making social situations difficult?
Are they leading to pain or physical discomfort, such as neck strain from head-jerking tics?
Are there co-occurring conditions, such as anxiety or OCD, that also need support?

For those who feel their tics are manageable, no formal treatment may be needed. But for those who want extra support, there are different options available.

Behavioural Therapy: Can It Help Reduce Tics?

One of the most effective non-medical treatments for Tourette’s is behavioural therapy. This doesn’t mean trying to stop tics altogether—since tics are involuntary, that isn’t possible. Instead, therapy focuses on helping people manage the urge to tic in a way that reduces its impact.

The most researched form of therapy for Tourette’s is CBIT (Comprehensive Behavioural Intervention for Tics). This method helps people recognise when a tic is coming and use a competing response to reduce its intensity.

For example, if someone has a tic that causes them to jerk their head, CBIT might teach them to engage a different muscle in a way that makes the tic less noticeable. Over time, this can help reduce how often the tic happens.

CBIT has been shown to help reduce tics in many people, especially children and teenagers. However, it requires practice and commitment, and it may not work for everyone. A trained therapist is needed to guide the process, and in some areas, access to CBIT may be limited.

Other therapy techniques include:

Habit Reversal Therapy (HRT) – Similar to CBIT, this helps people recognise and modify tic-related behaviours.
Exposure and Response Prevention (ERP) – This technique is often used for OCD but can also help reduce tic-related anxiety.
Cognitive Behavioural Therapy (CBT) – While not directly for tics, CBT can help manage anxiety and stress, which can make tics worse.

For those who are interested in therapy, speaking with a doctor or specialist about referral options can be a good first step.

Medications for Tourette’s: When Are They Used?

Medication is not usually the first choice for treating Tourette’s, but for those with severe tics that interfere with daily life, it may be an option. Medications don’t cure Tourette’s, but they can help reduce the frequency or severity of tics.

Some of the most commonly used medications include:

Dopamine blockers – These medications, such as aripiprazole and risperidone, help regulate brain activity that contributes to tics.
Alpha-adrenergic agonists – Medications like clonidine and guanfacine are sometimes used to reduce tics and can also help with ADHD symptoms.
Botox injections – In cases where tics involve a specific muscle group, Botox injections can temporarily weaken the muscles and reduce the tic.

Every medication has potential side effects, and they don’t work for everyone. Some people find that side effects like drowsiness, weight gain, or mood changes outweigh the benefits. Others find that medication helps them function better in school, work, or social situations. The decision to use medication is always a personal one and should be discussed with a healthcare provider.

Can Diet and Lifestyle Changes Help?

While there is no specific diet that cures Tourette’s, some people find that certain foods or lifestyle habits affect their symptoms. Small changes in daily routines can sometimes make a noticeable difference in tic intensity.

Reducing caffeine and sugar – Some people find that high-caffeine or sugary foods increase their tics, especially in children.
Eating a balanced diet – Ensuring a good intake of vitamins and minerals may help with overall brain health. Some studies suggest that magnesium and B vitamins could support neurological function, though more research is needed.
Getting enough sleep – Fatigue can make tics worse, so establishing a healthy sleep routine is important.
Regular exercise – Physical activity can help reduce stress and improve overall well-being. Some people find that activities like swimming, yoga, or martial arts help with tic control.
Mindfulness and relaxation techniques – Stress is a major trigger for tics. Practices such as deep breathing, meditation, or guided relaxation exercises can help manage tic-related anxiety.

Lifestyle changes alone won’t stop tics, but they can contribute to overall well-being and make symptoms easier to manage.

School and Workplace Adjustments: Making Life Easier

Many children and adults with Tourette’s benefit from small adjustments in their learning or work environments. These don’t need to be complicated, but they can make a big difference in reducing stress and improving concentration.

For students, helpful accommodations may include:

Being allowed to leave the room if tics become overwhelming
Having extra time for written tasks if tics affect handwriting
Using noise-cancelling headphones during independent work
Allowing movement breaks to release energy
Educating classmates so they understand and accept tics

For adults in the workplace, reasonable adjustments might include:

Flexible work hours or remote working options
A quiet space to take breaks if needed
The option to use assistive technology if writing or speaking is affected
Educating colleagues to promote understanding and reduce stigma

Having open conversations with teachers, employers, and colleagues can help create a more supportive environment. Many people with Tourette’s find that once others understand their condition, they feel much more comfortable in school or work settings.

Finding the Right Balance: Managing Tics on Your Own Terms

There is no one-size-fits-all approach to managing Tourette’s. Some people prefer not to seek treatment at all, while others benefit from a mix of therapy, lifestyle changes, and, in some cases, medication. The most important thing is finding a strategy that makes life easier and more comfortable.

For many, self-acceptance is just as important as tic management. Learning to embrace tics as part of who you are—rather than something to fight against—can help build confidence and reduce stress.

In the next section, we’ll take a closer look at how Tourette’s affects school and work life, with practical tips on advocating for support and creating a positive environment. Having Tourette’s doesn’t mean missing out on opportunities—sometimes, it just means finding a different way to approach them.

Thriving in School and the Workplace: Navigating Education and Employment with Tourette’s

Living with Tourette’s comes with its own set of challenges, but that doesn’t mean school, university, or work should feel impossible. With the right understanding and support, people with Tourette’s can succeed in any environment.

Children with Tourette’s may face difficulties in the classroom, especially if teachers and classmates don’t fully understand the condition. Adults in the workplace may worry about how their tics will be perceived by colleagues and employers. The good news is that with awareness, adjustments, and self-advocacy, people with Tourette’s can feel confident in their abilities and achieve their full potential.

Supporting Children with Tourette’s in School

School can be an exciting and rewarding place, but for children with Tourette’s, it can also bring challenges. Classrooms require focus, and tics can sometimes make learning or social interactions more complicated. However, with the right approach, schools can create an inclusive and understanding environment where children with Tourette’s can thrive.

The Importance of Educating Teachers and Classmates

One of the most helpful things a school can do is educate teachers and classmates about Tourette’s. When people understand what tics are and why they happen, there is less chance of bullying, teasing, or misunderstandings.

Teachers should know that:

Tics are involuntary and not done for attention.
Suppressing tics can be stressful and exhausting.
Tics can change over time, appearing and disappearing unpredictably.
Stress and anxiety can make tics worse, so a calm and supportive classroom environment is helpful.
Some children may have co-occurring conditions, such as ADHD or OCD, which also need support.

Schools can hold awareness sessions, provide information to staff, and encourage classmates to ask respectful questions. When Tourette’s is openly discussed, it helps normalise the condition and fosters a more accepting atmosphere.

Classroom Adjustments That Can Help

Many children with Tourette’s benefit from small adjustments that allow them to focus better and feel more comfortable. These may include:

Allowing movement breaks – Giving students the chance to step outside or move around can help release built-up tension.
Providing a quiet space – Having a designated area where a child can go if tics become overwhelming can be helpful.
Seating arrangements – Some children prefer sitting at the back where they feel less self-conscious, while others prefer sitting near the teacher for extra support.
Extra time on written tasks – Handwriting can be difficult for some children with Tourette’s, so allowing extra time or the use of a laptop can help.
Flexible testing conditions – Taking exams in a separate, quiet room can reduce stress and allow students to focus without worrying about tics.

Every child is different, so working with teachers to find personalised strategies can make a big difference.

Dealing with Bullying and Social Challenges

Unfortunately, some children with Tourette’s experience teasing or bullying because of their tics. Schools must have clear policies in place to prevent this and address any issues as soon as they arise.

For children, having supportive friends and understanding classmates can help reduce feelings of isolation. Encouraging open conversations about Tourette’s can help peers see past the tics and appreciate the person behind them.

University Life and Tourette’s

For students with Tourette’s, transitioning to university can be both exciting and overwhelming. New environments, social situations, and academic expectations can bring new challenges, but universities are becoming more aware of how to support neurodivergent students.

Registering for Disability Support

Many universities offer disability support services that provide accommodations for students with Tourette’s. These might include:

Priority seating in lecture halls
Note-taking assistance
Extra time for exams
Access to quiet study spaces
Support groups or counselling

Registering with disability services early ensures that support is in place before challenges arise.

Managing Social Situations

University life is about more than just academics—it’s also about socialising and building friendships. Some students with Tourette’s worry about how new people will react to their tics, but many find that being open and honest helps.

Explaining Tourette’s to roommates, classmates, and friends can prevent awkwardness and encourage understanding. Finding student groups, societies, or clubs with shared interests can also help build a strong support network.

Handling Stress and Workload

University can be stressful, and as we know, stress can make tics worse. Managing time effectively, taking breaks, and seeking help when needed can prevent feelings of overwhelm. Universities often offer mental health support services, which can be useful for managing stress, anxiety, or co-occurring conditions.

Succeeding in the Workplace with Tourette’s

For adults with Tourette’s, the workplace can bring new challenges. Some people worry about how colleagues or employers will react to their tics, while others are concerned about whether their condition will affect their job performance.

The good news is that many workplaces are becoming more inclusive, and there are legal protections in place to ensure that people with Tourette’s are treated fairly.

Should You Disclose Tourette’s to an Employer?

Disclosing Tourette’s at work is a personal choice. Some people choose to be open about their condition from the start, while others prefer to wait until they feel comfortable. There is no right or wrong approach—it depends on the individual and their work environment.

If tics are mild and do not impact work performance, some people choose not to disclose. However, if tics are noticeable or require accommodations, informing an employer can lead to better support and understanding.

Workplace Adjustments and Support

Employers have a legal obligation to make reasonable adjustments for employees with Tourette’s under disability rights laws. These adjustments don’t need to be complicated, but they can help create a more comfortable and productive work environment.

Possible adjustments include:

Flexible working arrangements – Allowing remote work or flexible hours if tics are more pronounced at certain times of day.
Providing a quiet workspace – Some people find that reducing distractions helps them focus.
Educating colleagues – Helping co-workers understand Tourette’s can reduce awkwardness and create a more supportive team.
Allowing movement breaks – Giving employees the freedom to take short breaks if needed.

Having an open conversation with an employer about what would be helpful can lead to positive changes in the workplace.

Thriving in Any Career

Tourette’s does not limit career possibilities. Many people with the condition go on to have successful careers in a wide range of fields, including medicine, law, teaching, science, and the arts. The key is finding a job that aligns with strengths and interests.

Some people with Tourette’s find that self-employment or freelancing offers flexibility, while others thrive in structured office environments. It’s all about discovering what works best on an individual level.

Creating an Inclusive World for People with Tourette’s

The more awareness and understanding there is about Tourette’s, the easier it becomes for people with the condition to succeed in school, university, and work. Simple changes—like educating classmates, supporting students, and making workplace adjustments—can create a world where people with Tourette’s feel accepted and valued.

In the next section, we’ll explore the connection between Tourette’s and mental health. Many people with Tourette’s experience co-occurring conditions like anxiety, OCD, or depression, and understanding how to manage these alongside tics can lead to a better quality of life.

Tourette’s and Mental Health: Understanding the Emotional Side of Living with Tics

Tourette’s is often thought of as a condition that only affects movement and speech, but it’s much more than just tics. Many people with Tourette’s also experience mental health challenges, including anxiety, depression, obsessive-compulsive disorder (OCD), and attention deficit hyperactivity disorder (ADHD). These co-occurring conditions can sometimes be more difficult to manage than tics themselves, affecting daily life, relationships, and overall well-being.

We know that dealing with both Tourette’s and mental health challenges can feel overwhelming at times, but you are not alone. Understanding how these conditions connect and learning about the support available can make a huge difference. With the right strategies, people with Tourette’s can manage their mental health and build a fulfilling, happy life.

The Connection Between Tourette’s and Mental Health

Research shows that around 85% of people with Tourette’s also have at least one co-occurring condition, and many have more than one. These conditions aren’t caused by Tourette’s, but they are often linked due to how the brain processes movement, emotions, and impulse control.

Some of the most common mental health challenges that come with Tourette’s include:

Anxiety disorders – Generalised anxiety, social anxiety, and panic attacks are common in people with Tourette’s.
Depression – Living with tics, dealing with social stigma, or facing challenges in school and work can sometimes lead to feelings of sadness or low self-esteem.
Obsessive-Compulsive Disorder (OCD) – Many people with Tourette’s also experience OCD, where they feel the need to perform certain actions or think specific thoughts repeatedly.
Attention Deficit Hyperactivity Disorder (ADHD) – Difficulty focusing, impulsivity, and hyperactivity often go hand in hand with Tourette’s.

Each person’s experience is different, but recognising these challenges early and seeking the right support can help manage symptoms and improve quality of life.

Anxiety and Tourette’s: Why Worry Feels Bigger

Anxiety is one of the most common mental health conditions linked to Tourette’s. Many people with Tourette’s feel anxious about when their tics will happen, how others will react, or whether they will be judged. This can lead to avoidance of social situations, difficulty concentrating, and even physical symptoms like headaches, nausea, and a racing heart.

Some common signs of anxiety include:

Overthinking situations, especially social interactions
Feeling restless or unable to relax
Avoiding people or places due to fear of embarrassment
Difficulty sleeping due to racing thoughts
Physical tension or stomach aches

Because stress and anxiety can make tics worse, learning how to manage anxious feelings can also help with tic control. Some helpful approaches include:

Cognitive Behavioural Therapy (CBT) – A type of therapy that helps people identify and change negative thought patterns.
Relaxation techniques – Deep breathing, mindfulness, and progressive muscle relaxation can help calm the body.
Breaking the cycle of avoidance – Avoiding situations because of tics can reinforce anxiety. Gradually facing feared situations can help build confidence.

For some people, anxiety medication may also be an option if symptoms are severe, but therapy and lifestyle changes are often the first step.

Depression and Tourette’s: Recognising the Signs

Living with Tourette’s can sometimes lead to feelings of frustration, sadness, or isolation. Some people feel like they don’t fit in, while others struggle with the challenges that come with managing tics. Over time, these feelings can develop into depression.

Some signs of depression include:

Feeling persistently sad or empty
Losing interest in hobbies or activities once enjoyed
Low energy and feeling exhausted all the time
Difficulty concentrating or making decisions
Changes in appetite or sleep patterns
Feelings of worthlessness or hopelessness

Depression is not a sign of weakness, and it’s not something that can be ignored or just “snapped out of.” It’s a real condition that deserves attention and support.

Seeking professional help, whether through therapy, medication, or support groups, can be life-changing. Talking about feelings with friends, family, or others with Tourette’s can also help reduce isolation and remind people that they are not alone.

OCD and Tourette’s: When Thoughts and Actions Become Repetitive

Obsessive-compulsive disorder (OCD) is another condition that often appears alongside Tourette’s. It involves unwanted thoughts (obsessions) and repetitive behaviours (compulsions) that feel necessary to reduce anxiety.

Some examples include:

Repeating words or phrases in a certain way
Feeling the need to touch objects a set number of times
Having intrusive thoughts that cause distress
Needing things to be in a specific order to feel “right”

OCD is different from tics because compulsions are performed to relieve anxiety, while tics are involuntary movements or sounds. However, the two can sometimes overlap, making it difficult to tell the difference.

Therapies like Exposure and Response Prevention (ERP) can be helpful in managing OCD symptoms. This type of therapy helps people gradually reduce their compulsions while learning to tolerate the anxiety that comes with not performing them.

ADHD and Tourette’s: The Struggle with Focus and Impulsivity

Many people with Tourette’s also have ADHD, a condition that affects attention, impulse control, and activity levels. ADHD can make it hard to focus in school or at work, follow through with tasks, or sit still for long periods.

Common ADHD symptoms include:

Difficulty paying attention or easily getting distracted
Struggling to stay organised or complete tasks
Acting impulsively without thinking through consequences
Feeling restless or constantly moving

ADHD can sometimes make tics worse, as difficulty sitting still or focusing can increase stress levels. However, with the right strategies, people with ADHD and Tourette’s can learn to manage both conditions effectively.

Some ways to support ADHD symptoms include:

Using timers or reminders to stay on track
Breaking tasks into smaller steps to make them more manageable
Taking movement breaks to help with restlessness
Using visual schedules or planners to stay organised
Considering ADHD medication if recommended by a doctor

How to Look After Mental Health with Tourette’s

Managing mental health is just as important as managing tics. Everyone has different coping strategies, but some approaches can help improve emotional well-being and make daily life easier.

Talking to someone – Whether it’s a friend, family member, therapist, or support group, talking about emotions can help reduce stress and loneliness.
Practising self-care – Getting enough sleep, eating well, and exercising can help maintain good mental health.
Finding a hobby – Engaging in activities like music, art, or sports can provide an outlet for stress and boost confidence.
Learning about Tourette’s – The more people understand their condition, the easier it is to accept and manage it.
Connecting with others – Meeting people who also have Tourette’s can provide reassurance and a sense of belonging.

Living with Tourette’s: Strength, Self-Acceptance, and Mental Well-Being

Tourette’s can bring challenges, but it can also help build strength and resilience. Many people with Tourette’s develop incredible determination, creativity, and empathy because of their experiences.

Instead of focusing on what’s difficult, it helps to celebrate what makes each person unique. Everyone has their own talents and passions, and Tourette’s does not define a person’s worth or potential.

Mental Health and Tourette’s: Turning Challenges into Confidence

Mental health challenges can feel overwhelming, but they don’t have to be faced alone. With the right support, people with Tourette’s can build confidence, manage anxiety and depression, and live fulfilling lives. Seeking help is a sign of strength, not weakness, and taking small steps toward emotional well-being can make a world of difference.

In the final section, we’ll explore how to raise awareness, support loved ones with Tourette’s, and help create a world that is more accepting and inclusive. Small actions can have a big impact, and by educating others, we can work toward greater understanding and acceptance for everyone with Tourette’s.

Raising Awareness and Supporting Someone with Tourette’s: How to Make a Difference

Tourette’s Syndrome is often misunderstood. Many people have only seen it in movies or on social media, where it is sometimes misrepresented. This lack of awareness can lead to confusion, awkward interactions, and even stigma for those living with the condition.

We can all play a role in making the world a more inclusive and understanding place for people with Tourette’s. Whether you are a parent, sibling, teacher, employer, friend, or just someone who wants to help, knowing how to offer support and raise awareness can make a real difference. By learning about the condition, educating others, and advocating for acceptance, we can help create a society where people with Tourette’s feel valued and understood.

Why Awareness Matters: Breaking Myths and Misconceptions

Tourette’s is not as rare as many people think. Studies estimate that around 1 in 100 children has some form of tic disorder, and Tourette’s affects at least 300,000 people in the UK alone. Despite this, public understanding of the condition is still limited.

Some of the most common misconceptions include:

All people with Tourette’s swear uncontrollably – In reality, only about 10-15% of people with Tourette’s experience coprolalia (involuntary swearing).
Tics can be stopped with enough effort – Tics are involuntary and, while they can sometimes be suppressed for short periods, they eventually have to be released.
Tourette’s is just a childhood condition – While some people find that their tics lessen as they get older, others continue to experience symptoms into adulthood.
People with Tourette’s have intellectual disabilities – Tourette’s does not affect intelligence. Many people with the condition are highly skilled and talented in various areas.

Raising awareness is about challenging these misconceptions and replacing them with real, accurate information. The more people understand Tourette’s, the easier it becomes for those with the condition to live without fear of judgment.

How to Support a Friend or Family Member with Tourette’s

If someone you care about has Tourette’s, you may wonder how best to support them. While everyone is different, there are some key ways to be a good friend, family member, or ally.

Be Patient and Understanding

People with Tourette’s cannot control their tics, and sometimes they may feel self-conscious about them. The best thing you can do is be patient. If someone tics in conversation, don’t stare or react negatively—just carry on as normal.

It can also help to:

Avoid drawing attention to tics unless they want to talk about them.
Never make jokes about their tics, even if they seem lighthearted.
Be aware that stress and excitement can make tics more noticeable.

Learn About the Condition

The more you understand Tourette’s, the better support you can provide. Reading about tics, co-occurring conditions, and common challenges can help you be more empathetic.

If your child, sibling, or friend has Tourette’s, consider asking them what kind of support they would like. Everyone is different, and what helps one person may not be helpful for another.

Be an Advocate

One of the biggest challenges people with Tourette’s face is dealing with public reactions. Strangers may stare, make comments, or even assume the person is behaving badly on purpose.

If you see this happening, standing up for the person with Tourette’s can make a difference. This could mean:

Politely educating others when they misunderstand the condition.
Supporting your friend or family member if they feel uncomfortable in public.
Helping teachers or employers understand how to create a supportive environment.

Sometimes, even a simple sentence like, “That’s a tic, they can’t control it,” can help defuse an awkward situation.

How Schools and Workplaces Can Be More Inclusive

Tourette’s doesn’t have to be a barrier to education or employment, but it does require understanding and accommodations. Schools and workplaces can take simple steps to make life easier for people with Tourette’s.

Creating a Supportive School Environment

Teachers and classmates play a big role in how children with Tourette’s experience school. Some key ways schools can be more inclusive include:

Allowing students with Tourette’s to take movement breaks when needed.
Offering extra time for writing tasks if tics affect handwriting.
Educating classmates so they understand Tourette’s and reduce teasing.
Being flexible with seating arrangements—some students prefer sitting near the door to step out if needed, while others prefer being closer to the teacher for reassurance.

When teachers understand Tourette’s and work with families to support students, school becomes a much more positive experience.

Supporting Employees with Tourette’s

In the workplace, small adjustments can make a big difference. Employers can support employees with Tourette’s by:

Allowing flexible work arrangements if needed.
Providing a quiet space for breaks.
Educating staff about Tourette’s to create an inclusive environment.
Encouraging open conversations so employees feel comfortable discussing their needs.

People with Tourette’s can excel in any career. The key is ensuring that workplaces are supportive and welcoming.

Raising Awareness: How You Can Help Spread the Word

Anyone can help raise awareness about Tourette’s. Even small actions can have a big impact on changing public perceptions.

Some ways to help spread awareness include:

Talking openly about Tourette’s – If you or someone you know has the condition, sharing personal experiences can help others understand it better.
Using social media to educate – Posting factual information about Tourette’s, sharing videos from advocacy groups, or correcting myths online can help spread awareness.
Supporting Tourette’s charities and organisations – Groups like Tourette’s Action (UK) and the Tourette Association of America work to increase awareness and support research.
Encouraging schools and workplaces to learn more – Suggesting awareness training or providing resources can help make these environments more inclusive.

Even small conversations can lead to big changes. The more people learn, the less stigma there is around Tourette’s.

Creating a More Understanding World for People with Tourette’s

Everyone deserves to feel accepted and supported, regardless of whether they have a condition like Tourette’s. By raising awareness, educating others, and offering support, we can help build a world where people with Tourette’s feel confident in who they are.

If you or someone you love has Tourette’s, remember that you are not alone. There is a growing community of people, organisations, and advocates working to make life better for those with the condition. Every step taken towards understanding and acceptance helps create a more inclusive and supportive society for all.

Living with Tourette’s: Support, Understanding, and Medical Cards from The Card Project UK

We hope you have found this guide helpful in understanding Tourette’s Syndrome. Whether you have recently been diagnosed, are supporting a loved one, or are simply looking for reliable information, we want you to know that you are not alone. Tourette’s comes with challenges, but with the right support and understanding, it is possible to live a full and confident life.

If you are looking for practical ways to make everyday situations easier, our Tourette’s Medical and Awareness ID Cards can help. These cards are designed to explain Tourette’s quickly and easily, whether you are in a public place, at work, at school, or even travelling. Instead of having to explain your condition repeatedly, a medical card can provide reassurance and understanding in moments where you need it most.

We offer a range of cards, including:

Tourette’s Medical ID Cards – Personalised with emergency contacts so that others can assist if needed.
Tourette’s Awareness Cards – A simple and effective way to educate others without needing to explain everything yourself.

If you would like to learn more about our Tourette’s Medical and Awareness Cards, visit our website at The Card Project UK. Our goal is to provide tools that help people with Tourette’s feel more comfortable and confident in their daily lives.

Tourette’s does not define you. You are more than your tics, and you have every right to be seen, heard, and understood. With knowledge, support, and the right resources, life with Tourette’s can be just as fulfilling as anyone else’s.

No matter where you are on this journey, keep going. There are people who understand, communities that care, and ways to make life easier. You are not alone, and you never have to face this by yourself.

Top UK Resources for Individuals Newly Diagnosed with Tourette's Syndrome

Being diagnosed with Tourette's Syndrome can be overwhelming, but numerous UK-based organizations offer support, information, and community connections to help you navigate this journey. Here are five reputable resources that provide nationwide assistance:

Tourettes Action

As the UK's leading support and research charity for Tourette Syndrome, Tourettes Action is dedicated to improving the lives of those affected by the condition. They offer a range of services, including a helpdesk, online and in-person support groups, training sessions, webinars, and a comprehensive resource library. Their mission is to ensure individuals with TS receive the practical support and social acceptance they need to live fulfilling lives.

The Brain Charity

The Brain Charity provides support for individuals with neurological conditions, including Tourette's Syndrome, across the UK. They offer free services such as information resources, support groups, and advocacy for carers, friends, and family members. Their library contains a wealth of materials on TS and related topics, aiming to empower individuals with knowledge and support.

Great Ormond Street Hospital (GOSH) - Tourette Syndrome Resources

GOSH offers detailed information about Tourette's Syndrome, including its symptoms, diagnosis, and management. They provide resources tailored for young people and families, such as information packs on anger management and coping strategies. Their aim is to educate and support those affected by TS, ensuring they have access to reliable and comprehensive information.

NHS Overview - Tourettes Action

The NHS provides an overview of Tourettes Action, highlighting their role as the leading support and research charity for people with Tourette Syndrome and their families. They offer services such as support groups, a befriender network across the UK, an online forum for community support, and resources for schools to assist parents and teachers.

NeuroTribe UK

NeuroTribe UK is an organization that supports neurodivergent individuals, including those with Tourette's Syndrome. They offer inclusive support through talking therapies, arts, and psychotherapy for children, young people, adults, and parents/carers.

These organizations provide valuable support and information to help you or your loved ones navigate life with Tourette's Syndrome. Connecting with them can offer community, resources, and guidance tailored to your needs.