What You Need To Know About FND Functional Neurological Disorder

Understanding FND: A Guide to Symptoms, Diagnosis, and Life After Diagnosis

We know how overwhelming it can feel to learn about Functional Neurological Disorder (FND). Whether you are experiencing symptoms yourself or supporting a loved one, there is a lot of information to take in. FND can affect movement, speech, sensation, and even thinking, making everyday life unpredictable and sometimes frustrating. But you are not alone, and there is support available.

Our aim is to help you understand FND in a way that feels approachable and reassuring. We want to make sense of the medical terms, explain what you might expect, and share useful facts without making things complicated. Most importantly, we want you to know that having FND does not mean you have to face it alone. There are ways to manage symptoms, find support, and improve quality of life.

This article will cover everything from what FND is and how it is diagnosed to treatment options and daily life with the condition. We hope that by the time you reach the end, you will feel more informed, supported, and confident about the next steps.

What is Functional Neurological Disorder (FND)?

Functional Neurological Disorder (FND) is a condition that affects how the brain and nervous system send and receive signals. It can cause a range of symptoms that affect movement, speech, sensation, and even memory. Unlike neurological conditions that result from damage to the brain, such as multiple sclerosis or Parkinson’s, FND is a problem with how the nervous system functions. The brain struggles to send and interpret signals properly, leading to symptoms that can be just as disabling as those seen in other neurological conditions.

Many people with FND describe feeling confused when they first hear the term. It is not a condition that is widely known, and even medical professionals do not always explain it well. That can leave people feeling lost, frustrated, or dismissed. We understand how that feels, and we want to make sure that you have the information you need in a way that makes sense.

How the Brain and Nervous System Are Affected

To understand FND, it helps to know a little about how the nervous system works. The brain is constantly sending messages to the body through nerves. These signals control everything from moving a hand to speaking a sentence. In FND, the brain struggles to send and process these signals properly, even though there is no structural damage.

You can think of it like a software issue rather than a hardware problem. If a computer has a glitch, the screen might freeze or the keyboard might stop working, even though the machine itself is not broken. FND works in a similar way. The body has the ability to move, speak, and function, but the messages from the brain do not always get through as they should. That can cause sudden symptoms like weakness, tremors, or even paralysis, which can be distressing for the person experiencing them.

How Common is FND?

FND is more common than many people realise. Research suggests that it is one of the most frequent reasons people visit a neurologist. In fact, studies show that FND is as common as conditions like multiple sclerosis or Parkinson’s. Despite this, many people have never heard of it before receiving a diagnosis.

Because awareness is low, FND is often misunderstood. Some people worry that their symptoms are not being taken seriously because there is no visible damage on brain scans. This can make the diagnostic process frustrating, which is why finding the right healthcare professionals is important. We know that being told you have FND can raise a lot of questions, and we want to help you find answers.

What Triggers FND?

FND can develop in different ways. For some people, it follows a physical event, such as an injury, infection, or surgery. For others, it might appear after a period of stress, trauma, or emotional distress. However, not everyone with FND has an obvious trigger.

Researchers believe that FND happens when the brain starts using different, less effective pathways to control movement and sensation. This can happen suddenly, and symptoms may appear out of nowhere. Some people wake up one day with weakness in a limb or find themselves unable to speak without warning. Others experience gradual changes over time.

While stress and past trauma can sometimes play a role, FND is not a mental health condition. It is a real neurological disorder, and the symptoms are not imagined or exaggerated. Unfortunately, because the condition has been poorly understood in the past, some people with FND have been dismissed or told that their symptoms are "all in their head." This is not true. FND is a genuine medical condition that needs proper recognition and support.

The Link Between FND and Other Conditions

FND often occurs alongside other medical conditions. Some people with FND also have migraines, chronic pain, fibromyalgia, or irritable bowel syndrome. Others may have anxiety or depression, which can make symptoms feel worse. However, it is important to understand that these conditions do not cause FND. Instead, they can interact with it, making it harder to manage.

For example, someone with FND and anxiety might notice that their symptoms flare up during stressful times. That does not mean stress is the cause of FND, but it does mean that managing stress can help keep symptoms under control.

Because FND overlaps with other conditions, it is important to have a doctor who understands the disorder and can rule out other possible causes. A neurologist with experience in FND can help make sense of what is happening and explain the best way to move forward.

Why is FND So Misunderstood?

One of the biggest challenges with FND is that it does not always show up on medical tests. If someone has a stroke or multiple sclerosis, a brain scan will usually show clear signs of the condition. With FND, standard scans and tests often come back normal. This does not mean that the symptoms are not real—it just means that the problem is in the way the nervous system is functioning, not in the structure of the brain.

Because of this, some people with FND struggle to get a diagnosis. They may see multiple doctors before finding someone who understands the condition. This delay can be frustrating and upsetting, especially when symptoms are severe. We understand how difficult that can be, and we want to reassure you that FND is real, and there are professionals who can help.

What Happens After An FND Diagnosis?

Being diagnosed with FND can bring a mix of emotions. Some people feel relieved to finally have an explanation for their symptoms, while others feel overwhelmed or uncertain about what happens next. Unlike conditions with clear medical treatments, FND requires a different approach.

The good news is that recovery is possible. While FND symptoms can be persistent, many people find ways to improve their condition with the right treatment and support. Learning about FND is an important first step in managing symptoms and finding strategies that help.

We want you to know that you are not alone in this. Many people with FND have found ways to live fulfilling lives despite their symptoms. There is support available, and understanding the condition is the first step towards finding a way forward.

Recognising the Symptoms of FND: What to Look Out For and What They Mean

Functional Neurological Disorder (FND) can affect people in many different ways, and no two cases are exactly the same. Some people experience sudden and dramatic symptoms, while others notice more subtle changes over time. Because FND affects how the brain and nervous system send and receive signals, the symptoms can vary widely, making it difficult to pinpoint what is happening at first.

We know how frustrating and confusing this can be. You might have been experiencing strange physical sensations, unexplained weakness, or even seizures without knowing why. Or perhaps you are supporting a loved one who is struggling with symptoms that do not seem to have a clear medical explanation. Whatever your situation, we want to help you understand the symptoms of FND, what causes them, and how they can change over time.

The Wide Range of FND Symptoms

FND symptoms can be grouped into different categories based on how they affect the body. Some people may experience just one or two symptoms, while others might have a combination of several. The main categories of symptoms include:

Motor symptoms – affecting movement and coordination
Sensory symptoms – affecting touch, pain, or temperature sensation
Seizure-like episodes – known as functional seizures or non-epileptic seizures
Speech and communication difficulties – affecting speech patterns and ability to form words
Cognitive symptoms – affecting concentration, memory, and mental processing
Autonomic symptoms – affecting functions like heart rate, digestion, and temperature regulation

Let's go through these in more detail.

Motor Symptoms: When Movement Becomes Difficult

Many people with FND experience difficulties with movement. This can include:

Weakness or paralysis in one or more limbs
Tremors or shaking that may come and go
Muscle spasms or stiffness
Difficulty walking, including dragging a foot or feeling unsteady
Sudden loss of control over movements

One of the most confusing things about FND is that motor symptoms often fluctuate. Someone might wake up one day unable to move their leg but find that movement improves later on. This unpredictability can make daily life challenging.

Studies show that up to 60% of people with FND experience limb weakness or paralysis at some point. Unlike conditions such as multiple sclerosis or stroke, FND does not cause permanent damage to the muscles or nerves. However, the brain is not sending the right signals, which makes movement difficult or impossible at times.

Some people also experience functional tremors, which are involuntary shaking movements. These tremors often worsen under stress but can sometimes be temporarily reduced with distraction or certain types of movement therapy.

Sensory Symptoms: Numbness, Pain, and Strange Sensations

FND can also cause changes in sensation, such as:

Numbness or tingling in the arms, legs, or face
Loss of sensation in certain areas of the body
Unexplained pain or burning sensations
Sensitivity to touch or temperature

One of the most common patterns seen in FND is functional sensory loss, where a person loses feeling in part of their body. Unlike nerve damage, which follows a predictable pattern, functional sensory symptoms do not match the usual nerve pathways. This is one way doctors can tell that the issue is related to FND rather than another neurological condition.

Pain is another major issue for many people with FND. Studies suggest that around 40% of people with FND experience chronic pain. This pain might not always have a clear medical explanation, but it is real and can have a big impact on daily life.

Functional Seizures: When the Body Loses Control

One of the most distressing symptoms of FND is functional seizures, also known as non-epileptic seizures. These episodes can look very similar to epileptic seizures, but they are caused by problems with brain function rather than abnormal electrical activity in the brain.

Functional seizures can involve:

Shaking or convulsions
Loss of consciousness
Sudden collapse
Staring spells or unresponsiveness
Unusual body movements

Around 15-30% of people referred to epilepsy clinics are found to have functional seizures instead of epilepsy. The key difference is that while epileptic seizures show clear changes on an EEG test, functional seizures do not.

It is important to know that functional seizures are real and can be just as disruptive as epileptic seizures. They are not "put on" or imagined, and they often happen in response to triggers like stress, fatigue, or changes in environment.

Speech and Communication Difficulties

FND can also affect the way people speak, making it difficult to form words or control their voice. Some common speech-related symptoms include:

Sudden loss of speech (also called functional mutism)
Slurred or slowed speech
A shaky or strained voice
Stuttering or difficulty starting words

Speech issues in FND happen because the brain struggles to coordinate the muscles needed for speaking. This can be frustrating and upsetting, especially when a person feels trapped inside their own mind without being able to express themselves.

Speech therapy can sometimes help with these symptoms by retraining the brain to use more effective pathways for communication.

Cognitive Symptoms: The Mental Impact of FND

Many people with FND struggle with brain fog, memory problems, and difficulty concentrating. This can make tasks like reading, following conversations, or making decisions much harder. Some describe it as feeling like their brain is overloaded or unable to keep up with normal thinking processes.

Common cognitive symptoms include:

Forgetfulness or short-term memory loss
Difficulty focusing or multitasking
Trouble finding words (word-finding difficulty)
Feeling mentally drained after short periods of concentration

These symptoms can make daily life frustrating, especially for people who used to be highly active or independent. Cognitive symptoms are often worse when a person is tired or under stress, which is why pacing and rest are important.

Autonomic Symptoms: When the Body’s Automatic Functions Are Affected

The autonomic nervous system controls functions like heart rate, digestion, and temperature regulation. In FND, these functions can become dysregulated, leading to symptoms such as:

Dizziness or feeling faint
Digestive problems (such as nausea or bloating)
Changes in heart rate (too fast or too slow)
Temperature sensitivity (feeling too hot or too cold)

These symptoms can sometimes overlap with conditions like Postural Orthostatic Tachycardia Syndrome (POTS), a condition that affects blood flow and causes dizziness when standing. Many people with FND experience symptoms that resemble autonomic nervous system dysfunction, making it important to rule out other conditions.

Why Do Symptoms Change Over Time?

One of the most difficult aspects of FND is its unpredictability. Some people find that their symptoms come and go, while others notice patterns based on stress, sleep, or physical activity.

It is common for symptoms to worsen during periods of stress or exhaustion. This does not mean that FND is caused by stress, but it does mean that managing stress levels can sometimes help reduce symptom severity.

People with FND often describe feeling frustrated by the inconsistency of their condition. One day they may feel relatively normal, while the next they struggle to walk or speak. This can be challenging to explain to others, which is why having the right support and understanding is so important.

Finding the Right Support

Living with FND can be difficult, but support is available. Whether you are newly diagnosed or have been dealing with symptoms for a while, it is important to seek out medical professionals who understand the condition. Neurologists, physiotherapists, and psychologists with experience in FND can help develop a treatment plan that works for you.

We know that FND symptoms can be life-changing, but you are not alone. Understanding what is happening in your body is the first step towards managing symptoms and finding ways to improve quality of life.

How is FND Diagnosed? Understanding the Process and What to Expect

Receiving a diagnosis of Functional Neurological Disorder (FND) can be a long and frustrating journey. Many people go through months or even years of medical tests before finally being told they have FND. This is because FND does not show up on standard medical scans, and not all healthcare professionals are familiar with the condition.

We understand how difficult this process can be. It is exhausting to go from doctor to doctor, searching for answers, only to be told that nothing is wrong on test results. If you or someone you love is trying to get a diagnosis, we want to explain exactly how FND is identified, what tests are used, and what you can expect when speaking to medical professionals.

Why is Diagnosing FND So Difficult?

Unlike conditions such as multiple sclerosis, stroke, or epilepsy, FND does not leave a physical mark on the brain or nerves that can be seen on an MRI scan or blood test. Instead, it is a problem with how the nervous system functions. This makes it harder for doctors to diagnose, especially if they are not familiar with FND.

Many people with FND go through a long process of elimination, where doctors rule out other neurological conditions before considering FND. While this can be frustrating, it is important to make sure that other conditions are not causing the symptoms. However, FND should not just be diagnosed by ruling out other possibilities. A good neurologist will recognise specific signs of FND based on how the body responds during an examination.

Studies show that FND is one of the most common conditions seen in neurology clinics, making up around 16 percent of outpatient referrals. Despite this, it is often misunderstood, and many people with FND struggle to get the recognition and support they need.

The Role of a Neurologist in Diagnosing FND

The best person to diagnose FND is a neurologist who understands the condition. They will look for specific signs that indicate FND rather than a structural problem in the brain.

A neurologist will usually:

Ask about symptoms and medical history
Perform physical examinations to check movement, reflexes, and coordination
Look for patterns that are unique to FND

Some of the tests a neurologist may carry out include:

Checking for Hoover’s sign, a test for functional leg weakness
Testing tremor entrainment, where a person’s tremor may change when focusing on a different movement
Looking for give-way weakness, where a limb suddenly gives out without a typical pattern of nerve damage

These tests help confirm an FND diagnosis because they show that the nervous system is not sending the correct signals, rather than there being damage to the nerves themselves.

Medical Tests and Why They Are Still Important

Even though FND does not show up on MRI scans or blood tests, doctors often order these tests to rule out other conditions. You may have:

MRI or CT scans to check for structural damage in the brain
EEG tests if you are experiencing seizures, to see if they are epileptic or functional
Nerve conduction tests to check if there is nerve damage causing weakness or numbness

If these tests come back normal, it does not mean that your symptoms are not real. It simply means that there is no structural damage, which fits with an FND diagnosis. Unfortunately, some people are told that their symptoms must be psychological or that they are imagining them because their test results do not show anything abnormal. This is not true. FND is a genuine neurological condition, and just because it does not show up on scans does not mean it is not happening.

How Long Does It Take to Get Diagnosed?

The time it takes to get a diagnosis varies from person to person. Some people are diagnosed quickly by a knowledgeable neurologist, while others spend years searching for answers. On average, studies suggest that people with FND wait around five to seven years before getting a correct diagnosis.

Delays in diagnosis can happen for several reasons:

Lack of awareness about FND among general practitioners and some neurologists
Symptoms that change over time, making them harder to recognise
Misdiagnosis with conditions such as epilepsy, multiple sclerosis, or fibromyalgia

If you suspect you have FND and are struggling to get a diagnosis, it may help to ask for a referral to a neurologist who has experience with functional neurological disorders. There are now more specialists who understand FND, and getting the right diagnosis is an important step toward managing symptoms.

What Happens After an FND Diagnosis?

Being told you have FND can bring up a mix of emotions. Some people feel relief that they finally have an explanation for their symptoms, while others feel uncertain about what happens next. Unlike conditions with a clear medical treatment, FND requires a different approach.

After a diagnosis, the next steps may include:

Being referred for physiotherapy or occupational therapy to help with movement and coordination
Looking into cognitive behavioural therapy (CBT) or other psychological support, especially if stress or past trauma is linked to symptoms
Learning about self-management techniques to reduce symptom flare-ups

It is important to find a healthcare team that understands FND and can provide the right support. Some doctors are still learning about the condition, and not all will have the knowledge needed to offer the best advice. If you feel like your symptoms are being dismissed, seeking a second opinion from a specialist may be helpful.

What If You Have Been Misdiagnosed?

One of the challenges with FND is that it can sometimes be misdiagnosed as another condition, or vice versa. Some people with multiple sclerosis, epilepsy, or other neurological conditions have initially been told they have FND before later receiving a different diagnosis. Others have been misdiagnosed with conditions like anxiety or fibromyalgia before finally being told they have FND.

If you feel uncertain about your diagnosis, it is okay to ask questions. A good neurologist will explain why they believe you have FND and what signs they used to make that diagnosis. If you feel that something has been overlooked, getting a second opinion can provide clarity.

How to Prepare for a Neurology Appointment

If you are waiting for a neurology appointment and suspect you might have FND, it can help to be prepared. Here are some tips:

Keep a symptom diary. Write down when symptoms occur, what makes them better or worse, and how they affect daily life.
Record videos if possible. If you experience movement problems or functional seizures, having a video can help your doctor see what happens during an episode.
List all past medical conditions and any recent stresses or illnesses. This can help your doctor understand any possible triggers.
Bring someone with you. Having a friend or family member can help you remember information and provide support.

Many people with FND struggle with medical anxiety due to past experiences of being dismissed. If this has happened to you, it may help to write down key questions to ask during your appointment.

What Comes Next? Navigating Life After an FND Diagnosis

Getting an FND diagnosis is not the end of the journey—it is the beginning of understanding what is happening in your body and finding ways to manage it. While FND can be challenging, many people find ways to improve their symptoms and regain independence with the right support.

We know how tough it can be to go through the process of getting diagnosed. You may have felt ignored, confused, or even disbelieved along the way. But now that you have an answer, you can start looking at ways to manage symptoms and find the support that works for you.

There is hope, and you are not alone. Many people with FND go on to find ways to live full and meaningful lives, even with the challenges the condition brings.

What Causes FND? Understanding the Triggers and Why It Happens

Functional Neurological Disorder (FND) can feel like a mystery. Many people struggle to understand why they have developed it, especially if they have no history of neurological issues. If you or a loved one has recently been diagnosed with FND, you might be asking, "Why me?" or "What caused this to happen?"

We know how frustrating it is to live with symptoms that do not seem to have a clear explanation. The reality is that FND is complex, and researchers are still working to understand all the factors involved. What we do know is that FND is a problem with how the nervous system functions, and multiple things can contribute to its development.

This section will go through the possible causes and triggers of FND, explaining the latest research in a way that makes sense. While not everyone will find a single clear cause for their condition, understanding what might be contributing to FND can help with symptom management and recovery.

The Brain’s Role in FND

To understand FND, we first need to look at how the brain controls movement, sensation, and automatic functions. The brain constantly sends and receives messages through the nervous system, telling the body what to do. This process happens without us having to think about it.

In FND, something disrupts this process. The brain struggles to send the right signals, and the body does not respond in the way it should. This is why people with FND can experience weakness, tremors, numbness, seizures, or difficulties with speech—despite having no structural damage in the brain.

Research has found that in people with FND, certain brain networks are not working as they should. Studies using fMRI scans have shown changes in how different areas of the brain communicate with each other. This is similar to what happens in conditions like chronic pain and some types of migraine.

This tells us that FND is not a psychological condition but a problem with brain function. The good news is that because the brain is adaptable, it is possible to retrain it to work more effectively over time.

Can FND Be Caused by Stress or Trauma?

One of the biggest misconceptions about FND is that it is always caused by stress or past trauma. While stress and emotional distress can play a role, they are not the only causes. In fact, many people with FND do not have a history of significant trauma or mental health problems.

That said, there is evidence that stress and trauma can make someone more vulnerable to developing FND. Research suggests that in some people, stressful life events, childhood adversity, or ongoing emotional distress may affect how the brain processes signals. This does not mean that FND is "all in the mind," but rather that emotional and physical experiences can influence brain function.

Some people develop FND after experiencing a traumatic event, such as:

A car accident or injury
A serious illness or surgery
A highly stressful or emotional period in life
A history of childhood adversity

However, many people with FND do not have any clear emotional or psychological triggers. This is why it is important to look at multiple factors when trying to understand why someone develops FND.

Physical Triggers: Can Illness or Injury Cause FND?

Many people with FND report that their symptoms started after a physical event, such as an illness, injury, or surgery. Some common physical triggers include:

A viral infection or post-viral illness
A concussion or head injury
Surgery or a medical procedure
A neurological event, such as a stroke or migraine episode

In some cases, the nervous system seems to "overreact" to a physical trigger, leading to ongoing functional symptoms even after the original illness or injury has healed. This is similar to what happens in conditions like chronic pain, where the nervous system remains in a heightened state of sensitivity long after the initial cause.

Studies have shown that people who develop FND after a physical trigger often have changes in how their brain processes movement and sensation. The nervous system may become "stuck" in an altered pattern of functioning, leading to persistent symptoms.

The Role of the Autonomic Nervous System

The autonomic nervous system controls functions like heart rate, digestion, and breathing. In many people with FND, this system does not work as it should. This can lead to symptoms such as dizziness, nausea, temperature sensitivity, and rapid heart rate.

Some researchers believe that dysfunction in the autonomic nervous system may play a role in FND. This is because many people with FND also experience symptoms of conditions like:

Postural Orthostatic Tachycardia Syndrome (POTS)
Irritable Bowel Syndrome (IBS)
Chronic Fatigue Syndrome (CFS/ME)

These conditions, like FND, involve problems with how the brain and body communicate. While they are separate conditions, they share similarities in how the nervous system behaves.

Why Do Symptoms Persist?

One of the biggest questions people ask about FND is why symptoms continue even after an initial trigger. If there is no lasting damage to the brain or nerves, why do symptoms remain?

Researchers believe that FND is linked to maladaptive neuroplasticity—a term that describes how the brain adapts in a way that is not helpful. When someone develops FND, the brain "learns" to use incorrect pathways for movement and sensation. These pathways become reinforced over time, making symptoms persist.

This is similar to what happens in chronic pain. If someone experiences pain for a long time, the nervous system becomes overly sensitive, and pain signals continue even after the original injury has healed. In FND, the brain has developed patterns of abnormal movement or sensation, and these patterns need to be retrained.

Is There a Genetic Link?

At the moment, there is no clear evidence that FND is directly inherited. However, some researchers believe that certain genetic factors may make someone more likely to develop FND. For example, some studies suggest that people with a family history of neurological or autoimmune conditions may have a higher risk.

There is also growing evidence that differences in brain chemistry and function may make some people more vulnerable to developing FND. However, more research is needed to fully understand the role of genetics in this condition.

Understanding Your Own Triggers

Because FND is different for everyone, it can be helpful to identify personal triggers. Some people find that their symptoms are worse during times of stress or after physical exertion. Others notice that certain environments, like bright lights or crowded places, make their symptoms worse.

Keeping a symptom journal can help you identify patterns in your condition. Tracking when symptoms flare up, what you were doing beforehand, and how you were feeling can provide useful insights. This information can also be helpful when speaking to doctors or therapists.

Moving Forward

We know that understanding the cause of FND can be difficult, especially if there is no clear trigger. Some people develop FND suddenly, with no obvious reason, while others can trace it back to a specific event. The most important thing to remember is that FND is real, and it is not your fault.

While researchers are still working to fully understand FND, there is hope. The brain has the ability to adapt and change, which means that with the right approach, many people see improvements in their symptoms. The key is to find what works for you, whether that is physiotherapy, psychological support, lifestyle changes, or a combination of treatments.

You are not alone in this. Many people with FND have found ways to manage their symptoms and live fulfilling lives. Understanding the possible causes of FND is just one step in the journey toward feeling better and finding the right support.

Finding the Right Treatment for FND: What Works and How to Manage Symptoms

Getting diagnosed with Functional Neurological Disorder (FND) often comes with more questions than answers. One of the biggest concerns people have is whether there is a treatment that will help. Unlike some neurological conditions that have clear-cut medical treatments, FND requires a different approach. The focus is on retraining the brain and nervous system so that symptoms become more manageable over time.

We know how frustrating it can be to hear that there is no simple cure. But that does not mean there is nothing that can be done. Many people with FND experience significant improvements with the right therapies, lifestyle changes, and self-management strategies. Some even recover completely. The key is to find the right combination of treatments for your specific symptoms.

This section explores the most effective treatment options for FND, explaining how each one works and what steps you can take to regain control over your condition.

Understanding How Treatment for FND Works

FND happens when the brain struggles to send and process signals correctly. This means treatment focuses on helping the brain restore proper function. Unlike conditions that are caused by structural damage in the brain, FND is related to how different networks in the nervous system communicate. Because of this, treatment focuses on helping the brain rewire itself through a process called neuroplasticity.

Research has shown that physiotherapy, psychological therapy, and symptom management techniques can all help retrain the brain. No two cases of FND are exactly the same, so treatment is often personalised to the individual.

How Physiotherapy Can Help Retrain Movement and Reduce Symptoms

For people with FND who experience weakness, tremors, or difficulty walking, physiotherapy is one of the most effective treatments. However, standard physiotherapy designed for muscle or joint injuries is not the right approach for FND. Instead, the goal is to teach the brain to use the correct movement patterns again.

A physiotherapist who specialises in FND will focus on:

Encouraging automatic movements rather than overthinking how to move
Using distraction techniques to reduce tremors and improve coordination
Training rhythmic exercises to improve balance and walking ability
Helping people regain confidence in their movements to prevent symptoms from worsening

A study found that over 70 percent of people with FND who received targeted physiotherapy reported an improvement in their mobility and movement. The earlier physiotherapy is started, the better the outcomes tend to be.

Psychological Therapies: Why They Are Used in FND Treatment

FND is a neurological condition, not a mental health disorder. However, psychological therapies are often helpful in managing symptoms because the brain’s emotional and physical functions are closely linked.

Many people with FND notice that their symptoms worsen during times of stress, anxiety, or emotional distress. Psychological therapy can help people understand these responses and develop techniques to reduce symptom flare-ups. Some of the most effective approaches include:

Cognitive behavioural therapy, which focuses on identifying thought patterns that may be reinforcing symptoms
Acceptance and commitment therapy, which teaches ways to manage distress without focusing on eliminating symptoms
Trauma-focused therapy, which may be helpful for those whose FND is linked to past trauma or stressful experiences

Studies show that psychological therapy can significantly improve symptoms in people with FND, particularly those who experience functional seizures or dissociative symptoms. While therapy is not a cure, it can play a major role in long-term symptom management.

Can Medication Help Treat FND?

There is no single medication that can cure FND, but some medications may help with certain symptoms. Doctors sometimes prescribe:

Antidepressants or anti-anxiety medications if stress or anxiety is making symptoms worse
Pain relief medications for people experiencing chronic pain alongside FND
Muscle relaxants or sleep aids for those struggling with muscle spasms or severe fatigue

It is important to speak with a doctor who understands FND before starting any medication. Some drugs that are commonly used for neurological conditions do not work well for FND, and others may even make symptoms worse.

Reducing Functional Seizures Without Medication

For people who experience functional seizures, also known as non-epileptic seizures, treatment is different from epilepsy. Anti-seizure medications do not work for functional seizures because they are not caused by abnormal electrical activity in the brain. Instead, the focus is on identifying and managing triggers.

Some of the most effective ways to reduce functional seizures include:

Keeping a seizure diary to track when and why episodes happen
Learning grounding techniques to prevent seizures from escalating
Using relaxation exercises to manage stress-related triggers
Engaging in therapy to address emotional factors that may contribute to episodes

Studies have shown that psychological therapy combined with lifestyle adjustments can reduce functional seizures in many people. Some individuals are even able to stop having seizures altogether with the right support.

Lifestyle Adjustments That Can Help Manage Symptoms

Many people with FND find that making small changes to their daily routine can significantly reduce symptoms. Some of the most effective self-management strategies include:

Pacing activities to avoid overexertion and prevent symptom flare-ups
Mindfulness and relaxation techniques to help regulate the nervous system
Regular but gentle exercise such as swimming, yoga, or walking
Improving sleep habits to support brain function and recovery

Keeping a symptom diary can also be useful in tracking what makes symptoms better or worse. Identifying personal triggers can help with managing symptoms more effectively.

How Likely Is Recovery from FND?

One of the most common questions people ask after diagnosis is whether recovery is possible. Many people do recover, and even those who continue to experience symptoms often find ways to improve their quality of life. Studies suggest that:

Around 30 to 40 percent of people with FND recover completely or experience major improvement
Another 30 to 50 percent see partial improvement but still have some symptoms
A smaller percentage continue to experience significant symptoms and disability

The chances of recovery are higher when treatment begins early. The sooner FND is recognised and the right therapies are started, the better the outcomes tend to be.

Even for those who do not fully recover, many people find ways to manage their symptoms and regain independence through a combination of therapy, self-management, and lifestyle changes.

Taking Control of Your Treatment Journey

We understand that living with FND can feel overwhelming, and it is not always easy to find the right treatment. But recovery is possible, and the brain can relearn better ways of functioning. The most important steps you can take are:

Finding healthcare professionals who understand FND and can offer the right support
Exploring different treatment options to see what works best for you
Making small but meaningful changes to daily routines to manage symptoms
Connecting with others who have FND for support and shared experiences

FND can be challenging, but you are not alone. Many people with FND go on to lead full, meaningful lives, even if the journey to recovery takes time. There is support available, and we are here to help.

Living with FND: How to Manage Daily Life and Adapt to New Challenges

Being diagnosed with Functional Neurological Disorder (FND) can feel like stepping into the unknown. Many people struggle with the unpredictability of symptoms, and everyday life can become a challenge. Tasks that once seemed simple may now require extra effort, and the uncertainty of how symptoms will behave from day to day can make planning difficult.

We understand how frustrating and overwhelming this can be. But living with FND does not mean life has to stop. With the right strategies, support, and adjustments, many people find ways to manage their symptoms and regain a sense of control.

This section focuses on practical ways to navigate life with FND, from managing fatigue and mobility issues to handling work, relationships, and mental well-being. While no two journeys with FND are the same, these tips and insights can help make daily life more manageable.

Understanding the Unpredictability of Symptoms

One of the biggest challenges of FND is that symptoms can change from day to day. Some people wake up feeling relatively normal, only to experience sudden weakness, tremors, or speech difficulties later in the day. Others may go for weeks with stable symptoms, then experience a sudden flare-up without warning.

Understanding this unpredictability is key to managing daily life. Many people find that tracking symptoms helps them identify patterns. Some common factors that can make symptoms worse include:

Physical or mental exhaustion
Stress or emotional distress
Lack of sleep or poor sleep quality
Changes in routine or environment
Sensory overload from noise, lights, or busy places

By recognising what makes symptoms worse, it becomes easier to plan activities and avoid situations that may trigger flare-ups.

Managing Fatigue and Conserving Energy

Fatigue is one of the most common and disabling symptoms of FND. Many people describe feeling completely drained after short periods of activity, even if they have had enough sleep. This is because the brain is working harder to carry out normal functions, leading to exhaustion.

Some of the most effective ways to manage fatigue include:

Using the pacing method, where activity is balanced with regular rest breaks
Breaking tasks into smaller steps rather than trying to do everything at once
Prioritising the most important activities each day and letting go of unnecessary tasks
Avoiding overexertion, as pushing through exhaustion can often make symptoms worse later

Many people find that energy levels fluctuate throughout the day. It can help to schedule the most demanding tasks during the times when energy is highest and allow for rest when energy dips.

Adapting to Mobility Changes

For those experiencing functional weakness, tremors, or gait issues, mobility can be a daily challenge. Some people with FND require walking aids, while others find that their ability to walk varies from day to day.

Physiotherapy is one of the best ways to improve mobility, but there are also practical adjustments that can make daily movement easier:

Using mobility aids when needed, without feeling guilty or ashamed
Arranging the home environment to reduce the need for excessive walking or standing
Taking regular breaks when moving around to avoid fatigue-related collapses
Practicing grounding techniques to regain control during episodes of functional movement problems

It is important to listen to the body and not force movement when symptoms are severe. With time and the right support, many people regain mobility and see improvements in movement-related symptoms.

Handling Work and Employment with FND

Many people with FND worry about how their condition will affect their ability to work. Some are able to continue working with adjustments, while others need to reduce hours or change jobs to accommodate symptoms.

If you are employed and living with FND, it can help to:

Speak to your employer about reasonable adjustments, such as flexible working hours or remote work options
Take advantage of workplace support schemes for people with disabilities or long-term health conditions
Consider reducing working hours if full-time work is too demanding
Look into alternative career paths that may be better suited to managing symptoms

For those who cannot continue working, it may be possible to apply for disability benefits or other financial support. Many people feel anxious about making this decision, but health should always come first.

Managing the Emotional Impact of FND

Living with FND does not just affect the body—it also takes a toll on mental health. Many people experience frustration, anxiety, and even depression as they adjust to life with a condition that can be unpredictable. It is completely normal to feel this way.

Some ways to manage the emotional impact of FND include:

Seeking professional support, such as counselling or therapy
Connecting with others who have FND through support groups or online communities
Practicing relaxation techniques, such as meditation or breathing exercises
Finding activities that bring joy and a sense of achievement, even if they need to be adapted

Mental well-being is just as important as physical health when living with FND. Reaching out for support and taking steps to care for emotional health can make a big difference.

Navigating Social Life and Relationships

FND can change the way people interact with friends, family, and partners. Some people struggle with feeling isolated, while others find that relationships become strained due to misunderstandings about the condition.

Some ways to navigate relationships with FND include:

Educating loved ones about FND so they understand the condition better
Being open about limits and explaining how symptoms affect daily life
Finding new ways to socialise that accommodate energy levels, such as shorter meet-ups or virtual gatherings
Seeking support from others who understand, such as FND support groups

It is common for people with FND to feel like they are letting others down when symptoms prevent them from socialising. But true friends and supportive family members will understand, especially when they are given information about the condition.

Planning for the Future with FND

One of the most difficult aspects of living with FND is not knowing what the future holds. Some people see improvements over time, while others experience ongoing challenges. Because of this uncertainty, it can be helpful to focus on what can be controlled rather than worrying about the unknown.

Some ways to create a positive outlook for the future include:

Setting small, achievable goals rather than focusing on long-term uncertainties
Finding adaptive ways to enjoy hobbies and interests
Exploring new opportunities that fit within current abilities
Keeping up with medical advancements in FND treatment and management

Many people with FND go on to build fulfilling and meaningful lives, even if their path looks different from what they originally planned. The key is finding ways to work with the condition rather than against it.

Finding Hope and Support in the Journey

We know that living with FND can be overwhelming, and the uncertainty of symptoms can feel exhausting. But there is support available, and many people find ways to adapt and thrive despite the challenges.

Whether it is through therapy, self-management techniques, or the support of family and friends, there are ways to regain a sense of control. Everyone’s journey with FND is different, but with the right approach, life can still be enjoyable and fulfilling.

You are not alone in this. There are people who understand, and there are resources to help. While FND may present new challenges, it does not have to define your future.

Supporting Someone with FND: Practical Advice for Family, Friends, and Carers

When a loved one is diagnosed with Functional Neurological Disorder (FND), it can be confusing and overwhelming. Many people have never heard of FND before, and because symptoms can change daily, it is not always easy to know how to help. You might feel unsure about what FND means, what support is needed, or how best to respond when symptoms occur.

We understand how difficult it can be to watch someone you care about struggle with a condition that is not well understood. It is natural to feel frustrated, helpless, or even doubtful at times, especially when medical tests do not always provide clear answers. But FND is a real and serious condition, and the right kind of support can make a huge difference.

This section is designed to help family members, friends, and carers understand what FND is, how it affects daily life, and what they can do to provide meaningful support. By learning more about the condition, you can help your loved one feel understood, validated, and better equipped to manage their symptoms.

Understanding FND from a Supporter’s Perspective

One of the most challenging aspects of FND is that symptoms do not follow a predictable pattern. Your loved one might seem fine one moment and suddenly be unable to move, speak, or function normally the next. This unpredictability can be difficult for both the person with FND and those around them.

Some of the most common symptoms you may see include:

Sudden weakness or paralysis in the limbs
Seizure-like episodes that resemble epileptic seizures
Difficulty walking or maintaining balance
Speech problems, such as stuttering or temporary loss of speech
Chronic pain, numbness, or unusual sensations
Fatigue that does not improve with rest

These symptoms can change from day to day or even hour to hour. This is one of the reasons why some people with FND struggle to be believed by doctors, employers, and even family members. It is important to remember that these symptoms are not imagined, exaggerated, or voluntary. FND is a neurological condition, and the symptoms are very real.

What Not to Say to Someone with FND

Many people with FND struggle with feeling misunderstood. Even well-meaning family members or friends can sometimes say things that make the person feel worse. Here are some things to avoid saying:

"You look fine to me." – FND symptoms are not always visible, but that does not mean they are not real.
"Maybe if you just tried harder, you could do it." – FND is not about willpower. The brain is not sending the right signals, which makes movement and other functions difficult.
"It’s probably just stress." – While stress can make symptoms worse, FND is not a psychological condition. It is a problem with how the nervous system functions.
"You were able to do this yesterday, so why can’t you do it today?" – Symptoms can change rapidly. Just because someone could do something one day does not mean they will be able to do it the next.

Instead of questioning or doubting symptoms, it is more helpful to listen and offer support in a way that respects what the person is going through.

How to Provide Emotional Support

Living with FND can be isolating. Many people feel like no one understands what they are going through, and some even withdraw from social interactions because they do not want to be a burden. You can help by being a source of encouragement and emotional support.

Some of the most helpful ways to provide emotional support include:

Listening without judgment when your loved one talks about their symptoms or frustrations
Acknowledging that their condition is real and valid, even if you do not fully understand it
Checking in regularly to see how they are feeling or if they need anything
Encouraging them to take breaks and not feel guilty for resting when needed

Sometimes, just having someone who listens and believes them can make a huge difference.

Helping with Daily Tasks

Many people with FND struggle with basic daily tasks, especially during flare-ups. Depending on the severity of symptoms, your loved one may need help with:

Household chores, such as cooking, cleaning, or shopping
Transport, especially if driving is difficult or unsafe
Reminders for appointments, medications, or important tasks
Assistance with mobility if they experience weakness or dizziness

It is important to strike a balance between helping when needed and encouraging independence. Some people with FND feel guilty about asking for help, while others worry that they will lose their sense of independence if too much is done for them. Asking what kind of support is needed, rather than assuming, can make a big difference.

Supporting Someone Who Has Functional Seizures

If your loved one experiences functional seizures (also called non-epileptic seizures), it can be scary to witness. These episodes can look like epileptic seizures but are not caused by abnormal electrical activity in the brain.

Here is what to do if your loved one has a seizure-like episode:

Stay calm and reassure them that they are safe
Remove any objects that could cause injury
Do not try to restrain them or force anything into their mouth
If they are unresponsive, stay with them until they regain awareness
If the seizure lasts longer than usual or they are injured, seek medical help

Most functional seizures stop on their own and do not require emergency treatment, but if you are ever unsure, it is always better to be cautious.

Encouraging Medical and Professional Support

One of the best ways to support someone with FND is to encourage them to seek professional help. This might include:

Seeing a neurologist who understands FND
Attending physiotherapy to help with movement and coordination
Seeking therapy or counselling to help with emotional well-being
Joining support groups to connect with others who have FND

Many people with FND feel discouraged by past medical experiences, especially if they were misdiagnosed or dismissed. Encouragement and practical help, such as offering to attend appointments with them, can make a difference.

Taking Care of Yourself as a Supporter

Caring for someone with FND can be physically and emotionally draining. It is important to take care of your own well-being as well. Some things that may help include:

Setting healthy boundaries so you do not become overwhelmed
Taking breaks and making time for your own interests and activities
Seeking support for yourself, such as talking to a counsellor or joining a carers’ support group
Remembering that you cannot fix everything, but your support still matters

Supporting someone with FND can be challenging, but it can also be incredibly meaningful. Knowing that you are helping a loved one navigate their condition can bring you closer together and strengthen your relationship.

Helping Someone with FND Live a Fulfilling Life

FND can change the way a person lives, but it does not have to take away everything they enjoy. Encouraging your loved one to find new ways to engage in hobbies, stay socially connected, and explore treatment options can help them maintain a good quality of life.

Some people with FND even discover new passions or ways of doing things they never considered before. With the right support, patience, and understanding, life with FND can still be fulfilling and meaningful.

We know that supporting someone with FND is not always easy, and there may be times when you feel unsure about what to do. But just being there for them, believing in them, and offering a helping hand when needed can make more of a difference than you realise.

FND Awareness and Advocacy: Why Understanding Matters

Functional Neurological Disorder (FND) is one of the most common conditions seen in neurology clinics, yet many people have never heard of it. Even within the medical community, FND is still widely misunderstood, leading to delays in diagnosis, inappropriate treatments, and a lack of support for those living with the condition.

We understand how frustrating this can be. Many people with FND feel dismissed, disbelieved, or even accused of exaggerating their symptoms. This is why awareness matters. The more people understand FND, the easier it becomes for individuals to access the right care, receive support, and live without stigma.

This section explores the importance of raising awareness about FND, the impact of misconceptions, and how advocacy can help improve understanding among healthcare professionals and the general public. It also explains how our FND medical ID cards can help people communicate their condition, particularly in emergencies.

Why Is FND So Widely Misunderstood?

One of the biggest challenges in raising awareness about FND is that it does not fit neatly into traditional medical categories. It is a neurological disorder, but it does not show up on standard medical tests. It can cause severe physical symptoms, yet many people are wrongly told it is psychological.

Some of the most damaging myths about FND include:

It is a mental health condition rather than a neurological disorder
People with FND are faking or exaggerating their symptoms
FND is caused purely by stress or past trauma
There is no treatment for FND, so nothing can be done

These misconceptions lead to many people with FND struggling to get the care they need. Studies show that the average time to receive a correct FND diagnosis is between five and seven years. Many individuals are misdiagnosed with conditions such as epilepsy, multiple sclerosis, or fibromyalgia before being correctly identified as having FND. Others are simply dismissed by doctors who do not recognise the condition.

By increasing awareness, especially within the medical community, more people with FND can receive faster diagnoses, better treatment options, and the support they deserve.

How Greater Awareness Can Improve Medical Care

Lack of understanding about FND does not just lead to frustration—it has real consequences. Many people with FND experience unnecessary medical tests, inappropriate treatments, or misdiagnoses that delay their recovery. Improving awareness can help in several ways:

Faster and more accurate diagnoses, reducing years of uncertainty
Better access to treatments such as physiotherapy and cognitive therapies
Increased recognition of FND in hospitals and emergency settings
Greater understanding of functional seizures, preventing unnecessary use of epilepsy medications

Several organisations and charities are working to improve awareness among healthcare professionals, but there is still a long way to go. Many people with FND still find themselves having to educate their own doctors about the condition.

How Our FND Medical ID Cards Can Help in Emergencies

For many people with FND, symptoms can make communication difficult, especially in stressful situations or medical emergencies. This is where our FND medical ID cards can be incredibly useful.

Our FND medical ID cards clearly explain the condition, helping medical staff, first responders, and members of the public understand what is happening. They are particularly useful for people who experience:

Functional seizures, which can be mistaken for epileptic seizures
Functional limb weakness, which can resemble stroke symptoms
Speech difficulties, making it harder to explain the condition verbally
Cognitive issues, such as memory problems or confusion

Having an FND medical ID card provides reassurance that symptoms are real and recognised, helping individuals avoid unnecessary medical interventions or misunderstandings. Many people tell us that having a medical ID card makes them feel more confident when out in public, knowing they can communicate their condition quickly if needed.

The Role of Advocacy in Changing Perceptions of FND

Advocacy plays a vital role in raising awareness about FND and ensuring that people receive the support they need. Many individuals with FND become advocates simply by speaking up about their experiences, educating others, and sharing reliable information. The more people talk about FND, the more difficult it becomes to ignore.

There are many ways to get involved in FND advocacy, including:

Sharing personal experiences through social media, blogs, or community events
Supporting FND awareness campaigns, such as FND Awareness Month in April
Encouraging healthcare professionals to learn more about FND by providing them with research articles and patient leaflets
Advocating for increased funding for FND research and treatment

Many people with FND find advocacy empowering, as it allows them to contribute to a growing movement for better recognition and understanding of the condition.

Why Public Awareness Matters for People with FND

Increasing public awareness of FND is just as important as improving medical understanding. Many people with FND face challenges in everyday life due to a lack of knowledge about the condition. This can affect:

Workplace support, where employers may not understand the need for reasonable adjustments
Education, as students with FND may struggle to access the right support at school or university
Emergency services, where paramedics and hospital staff may not recognise functional seizures or movement difficulties
Social interactions, as friends and family may not believe or understand the impact of FND

Conditions such as epilepsy, Parkinson’s disease, and multiple sclerosis have become better recognised over time due to awareness campaigns. FND needs the same level of recognition to ensure that individuals receive fair treatment and access to services.

Simple Ways to Help Raise Awareness

Everyone can play a role in raising awareness about FND, whether they have the condition themselves or want to support a loved one. Some of the most effective ways to spread awareness include:

Talking to friends, family, and colleagues about FND to help them understand it better
Sharing educational resources from reliable FND organisations
Supporting FND charities by taking part in fundraising or awareness events
Encouraging the media to cover FND stories and improve public knowledge

The more people learn about FND, the more likely it is that individuals living with the condition will be treated with respect and understanding.

Building a Future Where FND Is Better Understood

We know that living with FND can be incredibly difficult, and lack of awareness only makes things harder. But change is happening. More doctors are learning about FND, more research is being conducted, and more people are sharing their stories.

By continuing to raise awareness, challenge misconceptions, and advocate for better recognition, we can help shape a future where FND is better understood. Everyone deserves to have their condition taken seriously and to receive the support they need.

If you or someone you love has FND, know that you are not alone. There is a growing movement of people, charities, and advocates working to improve awareness and support. Together, we can make a difference.

Life with FND: Finding Support and the Right Tools

We hope this article has helped you understand more about Functional Neurological Disorder (FND), whether you are newly diagnosed, supporting a loved one, or looking for better ways to manage symptoms. Living with FND can be challenging, but you are not alone. With the right knowledge, support, and tools, it is possible to navigate life with greater confidence and security.

If you want to learn more about our range of FND medical ID cards and awareness cards, visit our website. These cards are designed to help people with FND explain their condition quickly and clearly, especially in medical situations, public spaces, or emergencies.

Why Having an FND Medical ID Card Can Make a Difference

For many people with FND, symptoms such as functional seizures, limb weakness, speech difficulties, and cognitive challenges can make communication difficult—especially in stressful situations. This is where having an FND medical ID card can be invaluable.

Emergency recognition – Medical staff, first responders, and even the general public often misunderstand FND symptoms. Carrying an FND medical ID card provides instant clarification, helping to prevent unnecessary medical interventions or confusion.
Confidence and security – Knowing that you have a way to explain your condition can reduce anxiety when going out, travelling, or attending appointments.
Better communication – If you struggle with speech or cognitive symptoms, handing over an FND medical ID card can quickly inform others about your condition without needing to explain.
Advocacy and awareness – Using an awareness card helps educate people about FND, contributing to better understanding in workplaces, schools, and healthcare settings.

Our FND medical ID cards are credit card-sized, durable, and designed to be carried easily in a wallet, pocket, or phone case. Many of our customers tell us that having one gives them greater peace of mind, knowing that they have a simple way to communicate their condition at any time.

Taking the Next Steps with FND: Moving Forward with Hope

We know that life with FND is not always easy, and there may be days when it feels overwhelming. But many people find ways to adapt, improve their symptoms, and regain control over their lives. Every small step forward counts, whether that is learning more about your condition, seeking the right support, or finding tools that make daily life easier.

You are not alone in this journey. There is a growing community of people, advocates, and medical professionals working to improve understanding and support for FND. No matter where you are in your journey, there is hope. The brain has the ability to change, symptoms can improve, and with the right approach, many people go on to live full and meaningful lives.

If you or someone you love has FND, take the next step in finding the support and tools that can help. Visit our website to explore our range of FND medical ID and awareness cards.

We are here to help, and we believe that with the right support, knowledge, and confidence, everyone living with FND can find their own path forward.

Navigating Functional Neurological Disorder (FND): Essential UK Resources for the Newly Diagnosed

Being diagnosed with Functional Neurological Disorder (FND) can feel overwhelming, especially when there is so much misinformation and misunderstanding about the condition. Many people struggle to find clear guidance, reliable information, and supportive communities that understand their experience.

We know how important it is to have the right resources, so we have gathered five of the best UK-wide organisations that provide support, education, and advocacy for people living with FND. Whether you are looking for medical guidance, community support, or simply reassurance that you are not alone, these resources can help.

FND Hope UK

FND Hope UK This patient-led charity is one of the most well-known organisations supporting people with FND in the UK. They focus on raising awareness, improving medical research, and providing a community for individuals living with the condition. FND Hope UK offers online peer support groups, educational materials, and advocacy initiatives to push for better recognition and treatment of FND across the UK.

FND Action

FND Action is dedicated to providing practical support for those diagnosed with FND. They offer detailed information about the condition, including symptom management strategies and treatment options. They also run support groups, both online and in person, where people with FND can connect, share their experiences, and seek advice from others who truly understand what they are going through.

Neurosymptoms.org

Neurosymptoms.org Created by a leading UK neurologist, Neurosymptoms.org is widely regarded as one of the best sources of medical information about FND. It provides clear, accessible explanations of symptoms, causes, and treatment approaches, helping both patients and healthcare professionals understand the condition better. This resource is particularly useful for those who want to learn more about the science behind FND and the latest research in the field.

The Brain Charity

The Brain Charity This UK-wide charity provides support for people with a range of neurological conditions, including FND. They offer emotional and practical assistance, including counselling, social activities, and befriending services. The Brain Charity helps individuals with FND access financial advice, employment support, and mental health services, making it a valuable resource for those struggling with the life changes that can come with an FND diagnosis.

FND Dimensions

FND Dimensions is a UK charity focused on creating a strong support network for individuals affected by FND. They provide an online community where people can share their experiences, attend virtual meet-ups, and access self-help resources. Their work also includes advocacy efforts to improve the recognition of FND within the healthcare system, ensuring that more people receive the right care and support.

These organisations offer a range of support, from medical guidance to emotional and practical help. Whether you are newly diagnosed or have been living with FND for years, connecting with these resources can make a huge difference in understanding your condition, managing symptoms, and finding a community that truly understands what you are going through.